Kennedy Krieger Institute

Kennedy Krieger Institute

Outpatient Center
Geography
Location Baltimore, Maryland, United States
Organization
Care system Non-profit organization
Hospital type Specialist
Affiliated university Johns Hopkins Hospital
Services
Standards JCAHO accreditation, CARF accreditation, Maryland State Department of Education
Emergency department No
Speciality Pediatric, Rehabilitation, Developmental Disabilities, brain disorders, spinal cord injury, musculoskeletal system
History
Founded 1937
Links
Website http://www.kennedykrieger.org/
Lists Hospitals in Maryland

The Kennedy Krieger Institute is a nonprofit, 501(c)(3) tax-exempt, Johns Hopkins affiliate located in Baltimore, Maryland that provides inpatient and outpatient medical care, community services, and school based programs for children and adolescents with learning disabilities,[1] as well as disorders of the brain, spinal cord, and musculoskeletal system. The Institute provides services for children with developmental concerns mild to severe, and is involved in research into various disorders, including new interventions and earlier diagnosis.[2]

History/Mission

Kennedy Krieger Institute opened its doors in 1937 when Winthrop Phelps, M.D., an orthopedic surgeon from Baltimore, responded to a dire need for treatment for individuals with cerebral palsy. Dr. Phelps founded the Children's Rehabilitation Institute, the first treatment facility in the country dedicated solely to children with cerebral palsy. The Institute was renamed the Kennedy Institute in 1968 in memory of President John F. Kennedy who enacted the Medical Training Act during his administration, to protect the rights and improve the lives of persons with disabilities. In 1992, the name was changed again to Kennedy Krieger to honor original board member and long-time supporter, Zanvyl Krieger.[3]

Since it opened, Kennedy Krieger Institute has evolved into an international resource for children with diverse brain-related disorders, from mild learning disabilities to rare genetic disorders. Kennedy Krieger provides medical care and schooling, in addition to its involvement in research.[4]

In a landmark opinion, the Maryland Court of Appeals admonished the Kennedy Krieger Institute for conducting a dangerous research study intended to measure the effectiveness of different lead paint abatement methods in 108 Baltimore apartments. The study design called for measuring lead levels in the blood of tenant children. The Court admonished Kennedy Krieger researchers for not fully disclosing to the poor tenants that their otherwise healthy children would be placed in danger by encouraging continued potential exposure to apartments with varied levels of lead paint for the purpose of the experiment. In the words of the Court: “Researchers intended that the children be the canaries in the mines but never clearly told the parents”.[5]

Core Areas of Focus

Patient Care

Kennedy Krieger treats more than 19,000[6] children annually. The Institute practices early identification, intervention, and treatment of disabilities to maximize potential and to prevent major problems throughout a child's life. Kennedy Krieger brings all the disciplines to bear-science, medicine, therapy- on the problems and injuries that affect a child's development. The Institute's interdisciplinary approach brings together a team of professionals from various fields and departments to create treatment plans tailored to the special needs of each child throughout all stages of care.[7]

Research

Kennedy Krieger scientists research to prevent and cure pediatric neurological disorders, spinal cord injuries and developmental disabilities. The Institute’s work has yielded answers that are improving the treatment and care of children with conditions such as autism, cerebral palsy and spina bifida. A team of international scientists and investigators at Kennedy Krieger is working to isolate culprit genes and develop new treatment models and therapies. The institute has a swift transfer of research to patient care.[8] The institute received a $1.5 million grant in early 2010 to perform brain cancer research.[9]

Special Education

The Kennedy Krieger School is a nationally recognized Blue Ribbon School of Excellence and a leader in providing model programs of innovative education for children ages 6 to 21 with a wide range of learning, emotional, physical, neurological and developmental disabilities. Education occurs in a variety of day-school settings and in partnership settings within public schools. The goal of Kennedy Krieger Institute's Department of Special Education is to provide a number of special education and related services to children with disabilities in a variety of school-based, hospital-based and recreational settings.

Community Programs

At Kennedy Krieger, the faculty and staff advance the treatment of developmental disabilities only by sharing knowledge with individuals and organizations throughout the local communities, across the country, and around the world. In order to help all individuals with developmental disabilities achieve their full potential, Kennedy Krieger works to increase the community’s knowledge and understanding. The cornerstone of these efforts is the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute. The Center focuses on professional training, community service, research, and information dissemination.[10]

Professional Training

In addition to the other core areas of focus, Kennedy Krieger also provides training opportunitites to increase the number of qualified specialists in the field of neurological and developmental disabilities. Each year, more than 400 individuals come to Kennedy Krieger to train with renowned experts in many fields from audiology to pediatrics, and nursing to occupational and physical therapy. The Institute also funds the training of the next generation of researchers.[11]

Scientific Breakthroughs

Adrenoleukodystrophy ALD

Adrenoleukodystrophy (ALD) is a rare genetic disorder of the brain that occurs only in males. The fatal condition destroys the nervous system, often leaving the victim unable to walk, and talk normally. For many years ALD took the lives of many and continues to do so today. In 1987, Augusto and Michaela Odone, parents of a child affected by ALD, invented Lorenzo’s oil as a treatment for the disease. Their story was in the 1992 Universal Studios motion picture, Lorenzo's Oil, starring Nick Nolte and Susan Sarandon. Dr. Hugo Moser, a renowned scientist at Kennedy Krieger Institute, joined forces with the Odone's, ultimately proving that their treatment, Lorenzo's oil, can prevent the onset of ALD if begun before neurological symptoms appear. Moser and colleagues also created the first diagnostic test for ALD, as well as a newborn screening test that can detect the disease from birth. On January 20, 2007 Dr. Hugo Moser died of complications from surgery to treat pancreatic cancer. Today, Dr. Moser's wife Ann B. Moser, continues this important work at Kennedy Krieger. In 2008, she helped to launch a pilot study to screen for ALD in 5000 newborns born in local Baltimore hospitals, the results of which will be used to advocate for nationwide newborn screening for this devastating disorder.[12]

Autism

Autism spectrum disorders (ASD) are a large focus of the Institute’s research and clinical programs. Autism is typically diagnosed by age three, however the Institute’s research is focused on detecting signs of the disorder even earlier. One of the pioneers of autism research today is Dr. Rebecca Landa, Director of the Center for Autism & Related Disorders at Kennedy Krieger. Landa has discovered that some babies begin to show risk factors for autism as early as 14 months of age. Her work also focuses on developing early intervention models for toddlers with autism that help to improve a child’s social, language, and cognitive skills.[13] The institute's expertise in the diagnose and treatment of autism is nationally recognized and its president, Gary Goldstein, is an oft-cited authority. Kennedy Krieger runs the Interactive Autism Network, an online national autism registry, launched in 2007.[14]

Spinal Cord Injury (SCI)

Spinal cord injury (SCI) causes damage to nerve roots and fibers that carry messages to and from the brain. Spinal cord injuries can result from physical trauma, tumors, developmental disorders or a number of different diseases. In 1995, Christopher Reeve, known for his role in all three Superman movies, was thrown from his horse and landed headfirst into a fence shattering his first and second vertebrae. Reeve’s cervical spinal injury paralyzed him from the neck down. Reeve sought the aid of Dr. John McDonald, who was working at Washington University in St. Louis, Missouri. After extensive activity-based therapies, Reeve was able to wiggle his toes and move a couple of fingers. Christopher Reeve died in 2004, however his achievements shined light on everyone affected by spinal cord injuries. Dr. McDonald left St. Louis and officially opened the International Center for Spinal Cord Injury (ICSCI) at Kennedy Krieger Institute on June 14, 2005. ICSCI is one of the first centers to have a focus specifically on children with chronic spinal cord injuries and paralysis. The center utilizes innovative activity-based therapies such as FES cycling, aquatic therapy, and partial weight supported walking to help patients regain sensation and feeling in their bodies. The center combines clinical research with a focus on restoration and rehabilitation for children and adults with chronic paralysis.[15]

Schooling/Special Education

The Kennedy Krieger Lower/Middle School located at the Fairmount campus in Baltimore serves students in grades pre-K through 8. The school’s preschool is a full day program focusing on the core deficits of autism for children ages 3–5. Students in the elementary and middle grades are carefully grouped for instruction that is aligned with national standards and guided by the Maryland College and Career Readiness Standards.[16]

The Kennedy Krieger High School is a special education day program on the Greenspring campus in Baltimore, serving more than 200 students aged 14–21. The children come from many Maryland school districts, the District of Columbia and from neighboring states to enroll in either 10 or 11 month programs. Industry training and work-based learning is emphasized for all students, who can graduate with either a Maryland high school diploma or a certificate of completion.

The Kennedy Krieger School LEAP Program (Life skills and Education for Students with Autism and other Pervasive Behavioral Challenges) serves students with severe autism in a 12-month day program. LEAP consists of 65 students in 10 different classrooms and it has a supportive 1:1 staff to student ratio.

The Montgomery County campus of Kennedy Krieger School opened in 2007 and primarily serves students with autism spectrum disorders. Students in grades 3-8 are on a high school diploma track, while students aged 11–21 can work towards a certificate of completion.[17]

Frequently Seen Diagnoses

Care Settings

President/CEO's

Affiliated Programs

References

  1. ↑ Swanson, H. Lee; Karen R. Harris; Steve Graham (2005). Handbook of Learning Disabilities. Guilford. p. 126. ISBN 978-1-59385-303-7.
  2. ↑ Tyre, Peg (2008). The Trouble with Boys: A Surprising Report Card on Our Sons, Their Problems at School, and What Parents and Educators Must Do. Random House. p. 163. ISBN 978-0-307-38128-6.
  3. ↑ Gunts, Edward (2009-05-20). "Changes at Kennedy Krieger Institute make the hospital friendlier for patients". The Baltimore Sun. Retrieved 2010-07-14.
  4. ↑ Corrigan, G.M. (2008-11-05). "Kudos! Baltimore institute helps children with developmental disabilities". The Baltimore Examiner.
  5. ↑ Grimes v. Kennedy Krieger Institute, Inc., 782 A. 2d 807 - Md: Court of Appeals 2001
  6. ↑ "Speech emerges in children on the autism spectrum with severe language delay at greater rate than previously thought". Reuters. 2013-03-04.
  7. ↑ "Kennedy Krieger Institute Opens Center for Genetic Muscle Disorders". 2009-12-08. Retrieved 2010-07-07.
  8. ↑ "Kennedy Krieger Institute". Retrieved 2010-07-21.
  9. ↑ Dash, Julekha (2010-01-05). "Kennedy Krieger Institute wins $1.5M for brain cancer research". Baltimore Business Journal. Retrieved 2010-01-12.
  10. ↑ "Maryland Center for Developmental Disabilities (MCDD)". Archived from the original on May 17, 2009. Retrieved 2010-07-21.
  11. ↑ "Kennedy Krieger Institute: Professional Training". Archived from the original on 2007-02-05. Retrieved 2007-07-15.
  12. ↑ Wendling, Patrice (2007-02-01). "ALD Advocate, Researcher Dr. Hugo W. Moser Dies". Clinical Neurology News. 3.
  13. ↑ Bower, Bruce (2010-04-10). "Researchers find early autism signs in some kids". Science News. Retrieved 2010-08-03.
  14. ↑ "Previous studies looking at a narrower population of youngsters have suggested that as much as 40% of the rise in autism cases might be explained by broader diagnostic definitions and by heightened awareness of the condition. But that still leaves 60% of the increase unaccounted for. "Most scientists believe there is something more than just awareness and a broadening definition that is responsible for the rise," says Dr. Gary Goldstein, president of the Kennedy Krieger Institute in Baltimore. 'We are seeing some fraction of the increase that is probably due to more cases of autism.'"Park, Alice (2009-12-29). "Autism Numbers Are Rising. The Question is Why?". TIME. Retrieved 2010-01-12.
  15. ↑ Richards, Sarah M. (March 2005). "Spinal Man". Baltimore Magazine.
  16. ↑ "KKI Fairmount Campus". Retrieved 8 September 2016.
  17. ↑ "Kennedy Krieger High School". Retrieved 2010-08-12.

External links

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